When you let yourself go through such a "secure" surgery as the ETS (Endoscopic Thoracic Sympathicothomy) you do not expect any negative complications or side effects. Especially since the hospitals all the time claim that the only known side effects are Horners Syndrom and mild compensatory sweating. Therefore the trauma and the doubt is extremly intense when you either at once after the operation or gradually during several months or years find that the body in many ways has "ceased to function".

Several members in our association have, when the symptoms occured, contacted the operating surgeon to ask if this is a consequence of the operation. The answer has always been that they never have heard of these kind of side effects, YOU must be an exceptional case! Through mouth-to-mouth and a couple of investigating TV-shows in Sweden the crowd of us "lonely exceptional cases" has grown to about 130 patients. We claim that this is only the top of the iceberg!

Through a detailed inquiry among our members we are now trying to map all our symptoms. We have in earlier investigations found these side effects.

Many of the symptoms are similar to those that come with Cronic Fatigue Syndrom or Fibromyalgia.

Most of us have in some way been forced to change our way of living. Physical exercise is almost impossible for us. Some have found it impossible to continue with their profession and felt that they had to find another job. Some have even lost the ability to work and have gone in early retirement.

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